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Showing posts from August, 2019

TRIP REPORT: SAINT JOHN (No, not the island). Part 1.

My wife was diagnosed with ulcerative colitis (UC) about 11 years ago. We’ve been married for 12, so you can see this has been a major presence in our lives. She would have a major flare about every two years. Flares early on started out responding to steroids really well. But with each flare, getting her back to remission was more and more difficult.  It was no longer a bump in the road. Now, it was a half-year ordeal.   We became used to a life of uncertainty. “When will the next flare hit?” This was often a thought, but rarely spoken. It’s hard not to be superstitious. But I wouldn’t talk about superstition either. Cognitively I know my thoughts won’t make a flare happen, but “why tempt fate.” We also became used to planning vacations that would have little or no penalty if you had to cancel them. Because you don’t know. (This flare required cancelation of three planned trips). This last flare started in February. Humira had failed. When she started this medication two years